Tuesday, April 5, 2016

Team Josh and the DCO Riders to Participate in the Million Dollar Bike Ride - In Honor of Josh Friedman

The Million Dollar Bike Ride, organized by Penn Medicine, will be held May 7th.

Team Josh and the DCO Riders is looking for your support.

Josh Friedman was a Unionville High School student, diagnosed with Dyskeratosis Congenita at age eight, he passed away at seventeen.

Josh Friedman lived an amazing life and  he touched many people through his humor, courage and tenacity.  He was active at Unionville High School where he participated in drama, sports and many social organizations.

We miss and continued to be inspired by Josh every day.

Team Josh and the DCO riders thank all of those that are able to participate or contribute to the team that honors Josh’s memory along with others that have currently courageously fighting or have lost their lives to DC.

Go to the Team Josh website to learn how you can help.

At present, there is no cure for DC. But with the explosion of scientific research around telomere function we remain hopeful science will give us insight into stopping the disease in its tracks.

Dyskeratosis Congenita Outreach, Inc., incorporated as a 501(c)3 in 2009, was formed to support families affected by DC. The genetic disease most often occurs in children but also affects adults. It’s symptoms are many, including bone marrow failure, gastrointestinal issues, pulmonary fibrosis, oral cancers, but are all linked to problems with telomere maintenance. Every patient affected by the condition has extremely short telomeres.

The rarity of the disease coupled with the extreme variance in symptoms often results in misdiagnosis and inappropriate treatment. DCO exists to spread awareness among doctors, but moreover to support and connect patients dealing with this often terminal illness with resources and expert medical advice. We support any endeavors that expand understanding of DC, its causes and its treatments.

For more information on Dyskeratosis Congenita Outreach, please go to: www.dcoutreach.org